Lewis Capaldi isn’t letting his Tourette’s syndrome stop him from performing and producing the heartbreaking songs that his fans adore.
Since disclosing his diagnosis in September, the “Before You Go” singer has been open with his fans about his tics and how they affect his body.
Capaldi appeared at Glastonbury Festival over the weekend, when his Tourette’s-caused twitches on stage during “Someone You Loved” prompted fans to finish the words for him while he waited for the symptoms to diminish. “I really sorry. “You’ve all arrived, and my voice is really packing in,” he informed the audience. “If that’s okay, we’ll play two more songs, even if I can’t hit all the notes.”
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The Glastonbury performance came after he canceled all of his performances in June leading up to the festival in order to “rest and recover” and be fit enough for the festival performance. On stage, he exclaimed, “I freaking dreamed about this, man!” “If this is the only time I’ll ever get to experience it, I’m telling you, it’s more than enough.”
Tourette’s syndrome is a nervous system illness that involves uncontrollable repetitive motions, noises, or tics. According to the Mayo Clinic, more than 200,000 people in the United States, including singer Billie Eilish, report experiencing the chronic disease each year.
The artist published his documentary How I’m Feeling Now in March, which focused on Capaldi’s mental health struggles and Tourette’s syndrome. It recorded how he’s managed his tics throughout his career, as he acknowledged that early on he resisted obtaining treatment, considering the tics a normal part of his existence.
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In one stressful episode, he argued with his father over how to treat his symptoms. Capaldi preferred to ignore things, whilst his father preferred that his son take action. Capaldi was forced to act after a serious onstage incident at a Wembley Stadium concert. “He fucking stopped singing,” his father cried as he recalled the concert. I dashed down the stairwell. The crowds are roaring… “It breaks my heart.”
Capaldi confessed in the documentary that he took a four-month break to focus on his mental health, which is when he was diagnosed with Tourette’s. Capaldi speaks extensively in the documentary about how his nervousness might increase his tics. “It flares up when I’m stuck in traffic.” “It gets very bad when I’m exhausted or after a big thing,” he remarked in the documentary.
His Glastonbury performance was one of his most significant since the release of his sophomore album Broken by Desire to Be Heavenly Sent in May, following a tour of Europe and the United States earlier this year.
The musician’s ailment flared up during a performance in Frankfurt, Germany, in late February, while he sang his closing song “Someone You Loved.” His admirers assisted him in singing the song’s last chorus as he sought to push through the bridge and final chorus.
Capaldi confirmed his diagnosis on Instagram Live in September, saying he now knew why he would frequently experience involuntary twitches, and that he observed his tics in video interviews as early as 2018.
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“I’ve always had it, apparently,” he explained at the time. “The worst part is that I get it when I’m excited, when I’m stressed, and when I’m happy.” It occurs frequently. Some days are more difficult than others, while others are less painful.”
“It looks a lot worse than it is,” he added. “It can be pretty unpleasant at times… However, it comes and goes.”
During the Instagram Live, he also recalled his TikTok followers asking, “Why is he twitching?” and wondering if he was on drugs. “It’s a new thing, and I haven’t really learned much about it — I’m learning,” he explained. “I have Botox on my shoulder to keep it from moving.” For a while, it worked.”
Capaldi revealed on the Jonathan Ross Show in October that everytime he gets a flare-up, his “left shoulder goes up like this” and his head jerks. “People think I’m high on cocaine all the time, but I’m not!” I’ll accept that I’m now the face of Tourette’s.”
Capaldi joined researchers at the University of Nottingham in January to test a device that sits on his wrist like a smartwatch and aids in the treatment of some of the syndrome’s symptoms. According to the BBC, the device intercepts brain signals to eliminate tics and was part of a clinical trial with more than 100 participants last year.
“The results were remarkable,” said the project’s director, a professor. “Lewis stated that the stimulation made him feel calmer, and that the device clearly suppressed his head and shoulder tics, which can be quite painful for him.”
It’s unknown if Capaldi has used the device continually, but he warned a crowd in Belfast, Northern Ireland last month: “You might see me twitching a little bit up here.” I have Tourette’s Syndrome, so nothing to worry about.”
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“I’m fine, baby. “I’m up here, and I’m fine,” he continued. “I’m fine, everything’s fine, I just twitch a little bit.”
Capaldi appeared on The Zach Sang Show late last year to discuss his diagnosis and how he “never even expected” Tourette’s syndrome to be the source of his problem, and how he thought that he was “immediately dying” as a result of the twitches.
“When they told me, I was like, ‘That makes so much sense,'” he remarked. “It fluctuates… Unfortunately, there is no clear answer, and ‘here’s something we can’t do anything about.’ But now it’s all about dealing with my general nervousness.”
Capaldi revealed that having Tourette’s affects his sex life because his medicine has an effect on his desire. “How should I put this? It makes climaxing difficult. It’s like a rollercoaster that never stops going up and up and up… That was a problem. Just a drop in libido.”
“As a sex machine like myself, I was just not going to let that go by!” he joked. Capaldi said he still takes medication and attempted cannabis drops to assist manage his problems, but they didn’t work.
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